Patient & Caregiver Resources - Dementia

Dementia is a syndrome consisting of a number of symptoms that include loss of memory, judgment and reasoning, and changes in mood and behaviour. These symptoms may affect a person's ability to function at work, in social relationships or in day-to-day activities.*

Sometimes symptoms of dementia can be caused by conditions that may be treatable, such as depression, thyroid disease, infections or drug interactions. If the symptoms are not treatable and progress over time, they may be due to damage to the nerve cells in the brain. Alzheimer's disease is the most common form of dementia.*

• Information Sheets / Guides
• Advocacy Organizations
• Support Groups
• Other Links

Information Sheets / Guides

• A Guide to Advance Care Planning - Click to download
  Source: Government of Ontario
• At Home with Alzheimer’s Disease: Useful Adaptations to the Home Environment - Click here
  Source: Canada Mortgage and Housing Corporation
• Buy Us For Us Guides: Enhancing Communication - Click here
  Source: University of Waterloo Murray Alzheimer Research and Education Program
• Buy Us For Us Guides: Enhancing Wellness - Click here
  Source: University of Waterloo Murray Alzheimer Research and Education Program
• Buy Us For Us Guides: Living and Transforming with Loss & Grief - Click here
  Source: University of Waterloo Murray Alzheimer Research and Education Program
• Buy Us For Us Guides: Memory Workout - Click here
  Source: University of Waterloo Murray Alzheimer Research and Education Program
• Buy Us For Us Guides: Managing Triggers - Click here
  Source: University of Waterloo Murray Alzheimer Research and Education Program
• Buy Us For Us Guides: Tips and Strategies - Click here
  Source: University of Waterloo Murray Alzheimer Research and Education Program
• Caregiver Support - Click here
  Source: Alzheimer Society of Canada
• Caring for Persons with Delirium, Dementia & Depression - Click here
  Source: Registered Nurses' Association of Ontario
• Dementia Observation System for Families - Click to download
  Source: The Centre for Studies in Aging & Health adapted from P.I.E.C.E.S. Canada
• Early Warning Signs Suggesting Cognitive Challenges - Click to download
  Source: The Centre for Studies in Aging & Health
• First Steps for Families of People Recently Diagnosed with Alzheimer’s Disease - Click here
  Source: Alzheimer Society of New Brunswick
• Healthy Brain - Taking Charge of Your Brain Health - Click here
  Source: Alzheimer Society of Canada
• Information about Alzheimer Disease and Realted Dementias - Click here
  Source: Alzheimer Society of Canada
• Living With Dementia: A Guidebook for Families - Click to download
  Source: The Centre for Studies in Aging & Health and MICT II Resource Group
• Powers of Attorney and Living Wills Some Questions and Answers - Click to download
  Source: Office of the Public Guardian and Trustee
• Preparing for the Move to Long-Term Care: A Checklist - Click here
  Source: Alzheimer Society Kingston
• Quick Reference Guide to the Progression of Behaviour Change in Dementia - Click here
  Source: Providence Care
• Recognizing Delirium, Dementia and Depression - Click here
  Source: Registered Nurses' Association of Ontario
• Rising Tide - The Impact of Dementia on Canadian Society - Click here
  Source: Alzheimer Society of Canada
• Seniors and Dementia Disorders, including Alzheimer's Disease - Click here
  Source: Canadian Mental Health Association, Ontario
• Twelve Steps for Caregivers - Click here
  Source: Rush University Medical Centre
• What older adults, their families and friends need to know about… Dementia - Click here 
  Source: Centre for Addiction and Mental Health

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Advocacy Organizations

• Alzheimer Society of Ontario - Click here
• Alzheimer Knowledge Exchange Resource Centre - Dementia Networks - Click here
• Canadian Mental Health Association - Click here
• South East Ontario Regional Dementia Network - Click here

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Support Groups

• Alzheimer Societies in South East Ontario - Click here
• Alzheimer Society of Canada - Early Stage Support Groups in Ontario - Click here
• Canadian Mental Health Association, Ontario - Support for Families and Caregivers - Click here
• Forgetful not Forgotten - Connecting and Supporting Canada's Alzheimer's Caregivers - Click here
• Community Support Services in Southeastern Ontario - Click here
  
  Some Community Support Service providers in South East Ontario:

• Community Care for South Hastings - Serving Belleville (including Thurlow Township), Tyendinaga Township and Deseronto and surrounding areas -  Click here
• Gananoque and Area Services to Assist Independent Living - Serving Gananoque, the Front of Yonge and Leeds and the Thousand Islands - Click here
• Land O’ Lakes Community Services - Serving Addington Highlands, including Kaladar, Flinton, Northbrook, Cloyne, Denbigh and surrounding areas - Click here
• Lennox and Addington Seniors Outreach Services - Serving Napanee and south central Lennox and Addington County - Click here 
• Mills Community Support Corporation - Serving Lanark County -  Click here
• Prince Edward County Community Care for Seniors Association - Serving Prince Edward County -  Click here
• Seniors Association Kingston Region - Serving Kingston and surrounding areas -  Click here
• Southern Frontenac Community Services Corporation - Serving rural Kingston and South Frontenac Township -  Click here

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Other Links

• Alzheimer Society of Canada - Alzheimer Wandering Registry: Safely Home - Click here

*Source: Alzheimer Society of Canada

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